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Another “eye-cation” at “The Thornton Hotel”…

Well Hello My Pretties, and your big dogs too….

I had my Left Eye Orbital Decompression on the 7th of February. As is always, a pleasure.

My Orbital Decompression with Drs. Bobby Korn and Audrey Ko went as smooth as ever! I did wake up with some sort of gloved turban situation, but I was thankful for being safe and alive and finally having my left eye look somewhat like my right, which has recovered beautifully.

I’m not sure of the next steps, as I will be seeing Dr. Korn again in about 3 weeks, but it is already looking beautiful.

Couldn’t have more amazingly supporting doctors and nurses! All of them were there for me beyond the job. Thankful is not enough!

LOok at that turban situation I have going there!?! I woke up and looked in a mirror and was like, “WTF?” I swear it was attached to my eye.. That glove… WHAT IS THAT.

Anyhoo, so without further ado, here I am in all my facial glory… (Comments are necessary, please!!!!)

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This and thaaaaaaaaaat…..

******* January 26, 2017 *******

yeah yeah yeah…

I know, I know. I’m very overdue for this blog. So I think it’s time to update y’all on my Amytastic life….

 

So, I had my first surgery on the right eye for my Graves Disease. Below is the slideshow on all of that….

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I’m having the left eye surgery on the 7th of February. Just around the corner. At Jacobs/Thornton Hospital. I’ll be there overnight, so feel free to check in or visit… Bring food offerings… Hahaha! No, like seriously. I had no food last time because I got out surgery later and I didn’t have the heart to ask Rob to get me food. There’s hardly any food offerings in that section of La Jolla unless you visit the mall… Yeah, no!

Thanksgiving was especially awesome… Excellent food offerings by all three of us.

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As for Christmas, we were sad to not attend my amazing Godparents dinner because I was Looking a bit GOONIESish!

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I made the exact dinner my beautiful and hardworking Godmother Angela made for the family tasty!

New Years was even better. It’s been awhile since I’ve had a kiss at midnight…

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And so that leads us to today. Sitting a Shiley. Pre-op stuff. The best thing is…  We get to spend the night with my favorite BFFs and brothers from excellent and beloved mothers, Robbie and Gregg. And I get to see FINNIE!! I’m just now getting into Prim’s inner circle. She’s slept on the guest bed with me and STAYED!! I’m flabbergasted! She finally lets me walk her and pet her and even pick her up and hold her. Making moves there!

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So so that’s my life in a nutshell since the last time I updated!

…. And if you are Aunt Judy’s (my dads first wife) husband…. A BIG HUGE SHOUT OUT to you for keeping up with my crazy!

 

 

 

Fun at the Shiley Eye Center

(This #Blog was started August 18, 2016… naturally I stopped writing because I couldn’t see..so I’m posting it with my update! I kept any mistakes in grammar and spelling, as is…)

********

….Eyes dilated!! Beware… No clue if any of this will be in correct spelling, grammar or punctuation. So, as I’ve talked briefly before about, I have Graves Disease, otherwise known as Eye Thyroid Disease.

So they measures. They poked. The prodded. They measured again. The eye dropped for pressure. Drops for dilation. And now I’m waiting to see my team.

Hopefully… There will be a treatmebt/surgicaln plan mentioned..

Eating my protein bar and thinking about tonights Big Brother eviction… Is it? Could it? Please got let Paulie .

****** And so that’s where it ended..

And my update today begins…. ******

It took over an hour to get my eyes straight from being dilated and pressure drops and they hurt until the next morning from just about everything from that appointment, but I’m #eternallygrateful for #ucsd and #shileyeyeinstitute and all the doctor, nurses, specialist, staff and everyone. I cannot thank y’all enough!

Moving on…

They ended up taking more photos, measurements and all sorts of stuff for over an hour.

Treatment plan is that I’m going in for another #CTscan then returning in October to make sure my measurements, etc., haven’t changed.

I realize that makes no sense so please partake of this: Graves Disease – Shiley Eye Institute

So looks like I’m going to be going into surgery this winter for the 1st of 4 or more facial and eye surgeries to move my “#bugeye” back.

Circa 2002 and before…

 

And in more recent years, the decline and beginning stages of Graves Disease

(I’ll add captions with dates for progression of disease when I’m more awake!)

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Apparently, because of my #ESLF status and my bleeding issues, Drs. Kikkawa, Granet, and Shaw are thinking of working on one side of my face first.

I’m riveted to see how that’s gonna look! I certainly hope not like this:

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Good news… those #wrinkles will be a thing of the past as one of the final surgeries will be a face lift, so to speak. #thereisagod #plasticsurgeryisquicker #yesplease

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#yesplease

 

I have alot of stuff going on I need to blog about so I’ll really work hard to focus and blast some out here as quickly as I can.

Love y’all!
Amy

New labs and some random thoughts..

So today is whatever day it is and I’m sitting at #ShileyEyeCenter to have more and more and more tests done because of my #Graves.

Yep. New ailment! Cuz yep… WHY NOT!!

Graves info

Amy before the Graves started presenting itself….

 

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And years going forward to now…

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Anyhoo..

I went to my new NEUROGOD, Dr. Ross #Mandeville at #UCSD and we are working on my #Neuropathy issues. So God willing I will have my legs and feet returned to me in perfect form in time for next years beach season.

But he had labs done here they are.



Anyone have any thoughts?

I had my labs done yesterday for dr. Vodkin. Here’s those results…. Seems I’m all good in my hood. MELD IS 11 so STATUS QUO!!!

Tonight, I’m having dinner with Robbie and finally meeting his beautiful parents… I’m soooo looking forward to this! I adore them already! #AnotherSetOfParents is always nice! I’ll post photos over at my Facebook page later. So don’t forget to have a look.

Also, don’t forget to like and share my adjoining  Amy’s Sad Liver Facebook page!

With love always in my heart and soul,
AmyAnd Mister Jinx (my new baby!)

Big Day Today!!!

At noon I get to do what I’ve waiting a year for… He didn’t believe me when I told him I was going to be “that patient”, but true to my word, I am. 

And now I can prove it.

Can’t wait to tell you.

Blog coming later…

1 Year. Humbled.

(As spoken at today’s meeting. March 15, 2016 – Noon.

The Huddle on Goldfinch, San Diego, CA)

  • Thank you Anna… There is no one better to have done this today. Your guidance has shaped me. Any time I had questions, needed a reading, needed advice… You are always there. You are one of the most kindest, gentle and extraordinary people I am honored to call my “person”.
  • Mom, Sitsi Angela and Parino Joe… I just can’t make amends enough..
  • Mitch, you saved my life. #BestPrivateNurseEVER!!!
  • My family. You are #Everything!

It’s not as rare anymore, being rather speechless, but I really, honestly, have nothing to say…

Except, I will say this, Humbly. To everyone here at The Huddle and those not able to be at this meeting..

Your support and love, all of the things I have done this past year. I didn’t know I needed all that support until I truly realized I needed it. If you call upon, the answers will make themselves known.

It’s not just my sobriety.

All of you have helped me accept my new journey, my life diagnosis. You have taught me how to not avoid. How to define avoidance and what it means to have acceptance and freedom from avoidance. And friendship. True, real, friendships. New and  old.

And when I have or have tried, you helped me change that defect. You all hold me accountable. I have learned to replace the negative with positivity.

I am forever grateful and truly humbled. From then, now and the future. God Bless you all, I love you.

With deep humility in my heart and soul,

Amy

P. S., See, I told you Dr. Michel Mendler, Dr. Alexander Kuo, Dr. Sathya Pokala, Dr. Irine Vodkin, Dr. Yuko Kono, Dr. Albert Ding, Dr. Joshua Rubin, Dr. Sheri Rosen, and especially my Psychiatrist, Dr. Kurtis Linderman (feel very sorry and please pray for this kind man for listening to my malaise) and all the many nurses (especially you, Joanie Salotti – knock knock… I’m talking ’bout you Joanie… We have some pickle to eat!!) and support staff at Grossmont and my beloved UCSD Hepatology and Liver Transplant Departments. I did it and will continue to do so! #LifeChange #NeverStopWorking

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My Georgie the Tortie Can Mangia!

Check him out, chomping his food…