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Fun at the Shiley Eye Center

(This #Blog was started August 18, 2016… naturally I stopped writing because I couldn’t see..so I’m posting it with my update! I kept any mistakes in grammar and spelling, as is…)

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….Eyes dilated!! Beware… No clue if any of this will be in correct spelling, grammar or punctuation. So, as I’ve talked briefly before about, I have Graves Disease, otherwise known as Eye Thyroid Disease.

So they measures. They poked. The prodded. They measured again. The eye dropped for pressure. Drops for dilation. And now I’m waiting to see my team.

Hopefully… There will be a treatmebt/surgicaln plan mentioned..

Eating my protein bar and thinking about tonights Big Brother eviction… Is it? Could it? Please got let Paulie .

****** And so that’s where it ended..

And my update today begins…. ******

It took over an hour to get my eyes straight from being dilated and pressure drops and they hurt until the next morning from just about everything from that appointment, but I’m #eternallygrateful for #ucsd and #shileyeyeinstitute and all the doctor, nurses, specialist, staff and everyone. I cannot thank y’all enough!

Moving on…

They ended up taking more photos, measurements and all sorts of stuff for over an hour.

Treatment plan is that I’m going in for another #CTscan then returning in October to make sure my measurements, etc., haven’t changed.

I realize that makes no sense so please partake of this: Graves Disease – Shiley Eye Institute

So looks like I’m going to be going into surgery this winter for the 1st of 4 or more facial and eye surgeries to move my “#bugeye” back.

Circa 2002 and before…

 

And in more recent years, the decline and beginning stages of Graves Disease

(I’ll add captions with dates for progression of disease when I’m more awake!)

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Apparently, because of my #ESLF status and my bleeding issues, Drs. Kikkawa, Granet, and Shaw are thinking of working on one side of my face first.

I’m riveted to see how that’s gonna look! I certainly hope not like this:

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Good news… those #wrinkles will be a thing of the past as one of the final surgeries will be a face lift, so to speak. #thereisagod #plasticsurgeryisquicker #yesplease

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#yesplease

 

I have alot of stuff going on I need to blog about so I’ll really work hard to focus and blast some out here as quickly as I can.

Love y’all!
Amy

Dark and Twisty Bubble…

In my “woe is me” bubble, still. I am working on ranch stuff and going to the ORV races here in Campo today and tomorrow is the 4 wheelers…

But I’m still in my bubble. It’s warm and cozy and I am in it to process some new shit in my already sick and dying life…

Bubble. Me. Now.

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I’m in my dark & twisty “bubble”, so I’m re-doing the walk-in pantry! 

Well. So last Thursday was interesting to say the least!

About 10 days ago, I went to the #opthamologist to continue on my “make sure all my other organs, orrifices and body parts are in tip-top shape” world tour…

What a mistake. Sort of. Well not really. I was referred to #Ocularplastics. Having had no clue as to why I was going, I went to the appointment Thursday, hence my “bubble” status. .

After 3, count them, 3 hours, Dr. Audrey Ko diagnosed me with “history of bilateral #Proptosis with suspicion for #Graves/Thyroid Eye Disease”… #SoManyTests

She’s rather convinced and sees me with all the classic signs… Oh yeah. Because Amy needed YET another effing #AILMENT!!!!

So here we go again with extensive blood labs, CT Orbits, Visual Fields, Ocular Color Photo, and then back to #ShileyEyeCenter to discuss the treatment plan.

All I know is, my eyes hurt all time, headaches, sinus, occasional double vision, 👀 protruding eyes 👀… And more.

So yeah. I’m in my bubble. And I’m just going about my bubble mess….

In my bubble, The Sleestacks rule!

In my bubble, The Sleestacks rule!

So I decided to emerge from my self-imposed “woe is me” avoidance bubble long enough my work on the #ranch.

Re-did the walk-in, gave Little Ricky a #puppy cut, made a pot of #Spanish #Lentil and Black Bean #Soup, and more.

I took photos of the walk-in after my #darkandtwisty #OCD hands got in there. Now it’s #justlikeilikeit!!

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My mom is kind of an #apocalypsejunkie! #HoardingMuch? I tried the best I could in there…

On Saturday, I emerged again and dragged myself out to the Campo #VMX Flat Track Races. Rather fascinating experience. I very much enjoyed it when Jeff, my long ago ex-fiancée, took me to #TheMurph to the #Motocross… So. Much. FUN!!! Wish it were more like that. Sadly, it felt like we watched more #tractor races (i.e. wetting down the track, filling holes, etc, etc…) than actually watching races. $10 sort of wasted. But at least I had a great experience.

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So now we are at Sunday. I’m climbing out of my bubble now to start a week anew.

Tomorrow, Monday, I’m headed to my therapist do discuss last weekend homework assignment. We are working on unsensored future plans. Is #sex and a hot man considered #Unsensored #futureplans? #cobwebs

I kid, I kid! Or am I???

A lot of new testing, exams, scans, to go through, but at least the sinus pain (or what I thought was #sinus pain), eye strain, painful eyes, double vision, protruding eyes, headaches, etc., will be taken care of.

This all culminates on Thursday, when I will have my sit down with my Ocularplastics and figure out a treatment plan.

I also am am meeting with my #LiverTransplant Doctor, Dr. Vodkin, and my Coordinator, Joanie, on Thursday. Just a regular check up and discussion of the latest shit in my life.

And God willing, I can fit in my work and a few meals with friends.

For this, I’m #blessed.

Hope everyone has a great week. I’ll try to blog more as I get back to the city this week.

Ti amo tutti molto,

Amy

Fun stuff I’ve been up to… Yet still single.. SHOCKINGLY…

So, like, I’ve been busy these days. I’ve had some fun stuff going on that is helping me in my…

AMY’S RESURGENCE TOUR 2016!!

Here are some photos of what

Robbie and I have been up to:

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Here are some photos of what

my dentist and I have been up to:

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    Good times at My niece Angela’s Mission Beach Volleyball Practice:

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    Ranch stuff and goings-on:

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  • Well, that’s about it. Nothing new in the liver department. Blood test are great and I’m getting back to work.. Thanks to my sister Virginia for giving me the time at sports games and practices with my niece and nephew…

  • Love to everyone… When I update, I’ll update… Otherwise follow me on Facebook and Instagram!!

Amy

So, like…

So like it’s 4am on today and I’m awake.

Sooo many random thoughts…

Life, reborn

Old becomes renewed

Days are tree limbs

Mornings and sunrises

The sun is my Sustinence 

Sunsets are reflections

Nesting 

Until the new day

Fun Reading ALERT, – Andy Denhart’s Email Blog

I ABSOLUTELY LOVE THIS WEBSITE AS WELL AS MISS TAMARA TATTLES for all the TEA & SHADE going on in all sorts of gossip and reality… They totally break it down and tell it like it is..

Please partake below and please, Please, PLEASE… Run, Run, RUN &  visit TamaraTattles.com


When an MTV reality show interrupted my vacation

Dear Newsletter Friends,

Last week I went on a brief vacation, staying with family in Hawaii. I was grateful for their generosity and for the time away. Instead of watching Survivor, for example, I hiked into the crater of a dormant volcano, which was incredible—and for someone used to walking and running on flat land at sea level, trudging back up steep grade of volcanic rock in the thin air was surprisingly exhausting.

On Friday, my last day there before flying home, I went out onto the lanai, ready for hours of just sitting and looking at the water and the volcanic mountains in the distance, reading a book (I still haven’t finished ‘The Goldfinch’), and just being present. I even left my phone in the bedroom, intending to not look at it.

The condo building overlooks a small public park and beachfront, where some kind of event was being set up—tents, grills, tables, chairs. A party? A family reunion? Then people started carrying long, rectangular wooden boxes, each side colorfully painted with two narrow triangles. Our first guess was that it was some kind of circus, maybe for animals. They laid out large pieces of wood with tall, thin poles stuck into them. Maybe someone was going to walk on their hands? Or dogs or cats would climb on these?

Through binoculars—I’m subtle—I saw that the small platforms on the tops of these poles were actually different shapes, circles and stars and hearts, and were painted with different colors. A man walked by carrying a big bunch of short ropes, and also what appeared to be pipe insulation foam. How very strange.

I traced the table rentals to a company that supplies film and TV productions with equipment, but couldn’t find anything more. After walking to the post office to mail postcards, we walked back through the park’s parking lot, where more vans were being unloaded. The crew had earpieces connected to radios; the vans said “Production.” This was very clearly some kind of TV show. The subsequent appearance of cameras and jib crane confirmed that.

But what show? I searched social media, and even posted the question on Twitter, but turned up nothing of productions in Maui. Then came one reference to Are You The One?, MTV’s competition between 20 single people whose alleged soulmates are in the cast.

I watched more, dipping into my book occasionally but also continuing to research and watch what was happening. Some condo staff had no idea (one person I talked to was asked a few days earlier if their parking lot could be used for “an event”), but eventually details came from someone we asked: it was a Los Angeles-based crew of people, filming an MTV show. There were 10 men, 10 women, all single. He didn’t recall the title, until I said, Are You The One?, which I now realize sounds less like a title and more like a proposition.

The cast arrived, looking very MTV 2016, and I took some pictures and tweeted what I saw over several hours, which was not a lot. Even when they eventually ran the challenge, it was over quickly. Later, they re-created it, with cameras in the mix, presumably to get close-up shots that will be cut in with the actual competition footage. There was a lot of set-up and tear down, from early morning to late afternoon, and very little action.

But it renewed my appreciation for the work required to make a television show. Those who ignorantly dismiss all reality television as fake might see this as evidence that it’s all a charade. I see it as evidence of the incredible amount of work required by so many people to produce a few minutes of entertainment for us, work that is, by design, invisible to viewers.

So much for a day of relaxing on my last day of vacation! Actually, it still was quite wonderful: I was watching reality TV in real time from the lanai. Such an incredible coincidence.

Hope you’re well. And should this ever happen to you, definitely let me know about it!

By the way, welcome to the few hundred new subscribers since the last newsletter. (Thanks to those of you who’ve forwarded this to friends and colleagues, or encouraged them to subscribe.).

Click Here to find highlights from recent things I’ve written, including an article for the magazine Pacific Standard, plus a list of everything published since the last Reality in Focus. Enjoy.

Best,

Andy

So many things… UPDATED!!!

… Where do I begin??

I’m going to just dive on in…

Let’s see, here is a photo of that amazing man who quite literally saved my life at Sharp Grossmont last year on that fateful, almost dead, day, March 15, 2015…

My Savior, Dr. Sathya Pokala and myself, March 2016

My Savior, Dr. Sathya Pokala and myself, March 2016

I promised him when I first met him on the 19th of March, last year, after he told me what happened, that he would see me in a years time. Sober, healthy (-ish, adjacent), and better than ever. (Bad hair due to a severe hypoglycemic attack just prior to seeing him… #greattiming!)

I was, just that. So I made my appointment and sat waiting for him in his waiting room. And there he was. The God who saved me and started me on my new journey. When I promised him last year, he said sure (with that “sure, right… heard that before!” look on his face) and all year I waited. And waited. AND WAITED.

I followed my new journey put forth to me to the letter, and kept every promise. Followed every rule. And now all of it has become my life. And I love it. And I’m grateful.

So a BIG HUUUUGE THANK YOU to

Dr. SATHYA POKALA at Sharp Grossmont Hospital

I also want to take a moment to also thank him for restoring my faith, somewhat, into Sharp Healthcare, this after Sharp Memorial Hospital dropped the ball on my beloved father and quite literally killed him, by negating and avoiding and ignoring the severe sepsis, aka “pseudomonas”, taking over his body and out of his arm (he had me take photos, this mere weeks before he passed away on Halloween, 2013).

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I am aware that this blog wasn’t the perfect time place to bring it up, but as I like to view life now, “there’s no time like the present!” And I also know that my father asked me to take these photos. When I asked why, he relplied, “just take them, they will be important one day!”

I didn’t question. And I kept silent for a very, very long time. Moral of the story…

DON’T LET THIS HAPPEN TO YOU OR YOUR SEASONED (aka older) FAMILY MEMBERS!

And with the untimely death of the beloved TREASURE, Ms. Patty Duke, just 3 days ago,

SEPSIS is the number one killer in the ER at hospitals.  

Every year, severe sepsis strikes more than a million Americans. It’s been estimated that between 28 and 50 percent of these people die – far more than the number of U.S. deaths from prostate cancer, breast cancer and AIDS combined. The number of sepsis cases per year has been on the rise in the United States.

And it is a silent one!

I implore you, to keep abreast of your parents healthcare. ALWAYS ask questions. And if you are still concerned, SCREAM AT THE TOP OF YOUR LUNGS for proper medical care. Seniors and children get thrown to the wasted ode because of their inability to financially care for their medical (for the most part… If you get my drift!!!)

At any rate, sorry to go off-topic, but I feel like it was time to correlate why my stay at Sharp Grossmont wasn’t just about my living, but was also meaningful to me because it was as if he died for me to live. And he’s been with me ever since I almost died that day.

It also lets those who have been with me when I’m driving past Sharp Memorial Hospital and hear me growl, like a very angry cougar!

Grrrrrrrrrrr!

Grrrrrrrrrrr!

You know I just had to change the depressive tone back to happy stuff! And now on to other news…

I added a link to the video of Dr. Hamed Aryafar explaining the results of my TIPs Shunt Surgery…

Dr. Aryafar explains my TIPs Shunt surgery & results

Took some pretty great photos in the last few weeks… Just me, and life… Fun stuff…

Have a look at the gallery on the main page on the right, or I guess, below….

(BTW.. I’m still hoping the “Dog Stork” will send me a new angel to my doorstep!)

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Well, that’s it for now… Please share, comment and for the love of The Good Lawd that all is holy, LIKE THE PAGE AND POST!

Stay well, healthy and wise,

Amy Kristen Suter, aka “Miss Cordelia Parker Chase”

(It’s an inside GBF thing!)